Department:102400 Corporate Affairs
Location:San Diego, USA- Remote
Be a part of a global team that is inspired to make a difference in the lives of people living with rare disease.
At Travere Therapeutics, we recognize that our exceptional employees are vital to our success. We are a dedicated team focused on meeting the unique needs of rare patients.Our work is rewarding - both professionally and personally - because we are making a difference. We are passionate about what we do.
We are seeking talented individuals who will thrive in our collaborative, diverse, fast-paced environment and share in our mission - to identify, develop and deliver life-changing therapies to people living with rare disease. We stick by our values centered on patients, courage, community, and collaboration to pursue our vision of becoming a leading biopharmaceutical company dedicated to the delivery of innovation and hope to patients in the global rare disease community.
At Travere Therapeutics, we are in rare for life. We continue to courageously forge new paths as we move toward a common goal of elevating science and service for rare patients.
Job Title: Patient Advocacy Specialist
Reports to: Executive Director, Patient Advocacy
Department: Corporate Affairs
Cost Center: 102400
Location: San Diego or Remote - USA
Date: 3.14.25
HR to Complete
FLSA status Exempt
Grade Level 3
Position Summary:
The Specialist, Patient Advocacy reports to the Executive Director, Patient Advocacy within the Public Affairs function and plays a critical role in supporting the company's patient advocacy operational success, external partnerships, and program support. This role is responsible for providing strategic project management, stakeholder engagement, and operational leadership across Patient Advocacy. Additionally, this position will provide key support for the Rare Kidney Disease (RKD) and Classical Homocystinuria (HCU) programs, ensuring strong cross functional engagement with colleagues and advocacy groups, to advance the company's commitment to addressing unmet needs in rare diseases.
Responsibilities:
Operational Leadership:
* Provide project-based support to the Advocacy Team, assisting with:
o Contract management, invoicing, and process flow with external parties
o Follow-ups and program close-outs for Advisory Board Meetings, ensuring compliance with internal processes and external regulatory requirements
o Tracking and reporting on advocacy budgets, grants, and program expenditures to support annual planning and financial oversight
* Coordinate the charitable grants process for patient advocacy, ensuring compliance with internal policies and external regulations.
o Day to day oversight of the Advocacy Grants portal, Cybergrants
o Preparation of meeting documents, post meeting approvals, and timely grant fulfillment.
* Ensure all advocacy initiatives are aligned with regulatory guidelines and industry best practices.
Strategic Project & Event Management:
* Oversee the planning and execution of virtual and in-person advocacy events, including:
o Advisory boards
o Roundtable discussions
o RDPAC Meetings
o Task force meetings
o Conferences, exhibition booths, and networking events
* Lead agenda development, contract management, and honorarium processing for key advocacy initiatives.
* Provide on-site support at select advocacy events to ensure seamless execution and stakeholder engagement.
* Support the Rare Disease Patient Advisory Council, fostering patient insights and partnerships to enhance company initiatives.
Communications & Process Improvement:
* Assist with drafting and refining presentations, policies, and procedures to enhance the impact of advocacy initiatives.
* Identify and implement process improvements to drive efficiency across Patient Advocacy.
* Support the development of educational materials, briefings, and strategic reports for senior leadership and key stakeholders
Advocacy & Stakeholder Engagement:
* Support the HCU and RKD Patient Advocacy leads with strategic initiatives, patient community engagement, and advocacy-related projects.
* Provide research, content development, and project management support for special initiatives, policy engagement, and advocacy-driven programs.
Education/Experience Requirements:
* Bachelor's degree in related Life Sciences discipline. Equivalent combination of education and applicable job experience may be considered.
* 2+ years of experience in an administrative or operational role, experience working in pharma, biotech, healthcare, or a related field is preferred.
Additional Skills/Experience/Requirements:
* The ideal candidate will embody Travere's core values: Courage, Community Spirit, Patient Focus and Teamwork.
* Exceptional project management, organizational, and communication skills with the ability to navigate multiple priorities in a fast-paced setting.
* Experience managing grants, contracts, and budget-related processes in a regulated environment.
* Experience with Cybergrants platform is a plus.
* Meeting, event, and conference planning background, requiring attention to detail and proactive communication skills, including engagement with key opinion leaders.
* Familiarity with patient advocacy, rare disease, and healthcare policy.
* Ability to build and maintain relationships with patient advocacy groups, healthcare professionals, and internal stakeholders.
* Ability to travel 15% domestically
* All positions have an essential job function to be able to perform face to face work with colleagues and/or onsite in San Diego. No role is expected to be 100% remote.
Travere is an EEO/AA/Veteran/Disability Employer
Total Rewards Offerings:
Travere provides comprehensive total rewards offerings that demonstrate our commitment as... For full info follow application link.
Travere Therapeutics, Inc. is an EEO/AA/Veteran/Disability Employer
